Books, for Persons Living With ALS

There are many excellent resources available to help you understand ALS, and solve the problems you may encounter.  If you would like any of the resources below please email us here.

Books Published by the ALS Society of Alberta

Grandpa, What is ALS?, By Bonny Gold-Babins - $10
This is the story of the love shared by a grandfather, who develops ALS, and his grandchild, who learns to accept and understand the disease. Their special bond remained unchanged. This book is for the whole family regardless of age.

Cries of the Silent, by Evelyn Bell - $12
This book opens a window of understanding into the ravages of ALS (Lou Gehrig's Disease) and into the mind and soul of a truly remarkable woman. What a privilege it is to meet Evelyn Bell in each painstakingly carved word! Readers will not wonder ever again what it must be like to have ALS. - Suzanne Lawson, ALS Society of Canada

ALS Canada Resources

A Manual for People Living With ALS - $20
This manual provides information and helpful hints that will assist people with ALS to manage their new challenges. Chapters include What is ALS?, Coping with ALS, Your Healthcare Team, Adapting to Breathing Difficulties, and others.

This resource is available as a free download, please click here.

Resources for ALS Healthcare Providers - $25
This book provides healthcare providers with some information on the challenges presented by ALS, by summarizing and presenting literature and resources available as accurately as possible.

Basic Information Series - $3 per booklet
This series of booklets, created in 1990, provides an introduction to various topics faced by people with ALS, their families, and their caregivers. Titles in the series include:

• An Overview for People with ALS
• Eating, Drinking, and Swallowing Strategies
• Communication Strategies
• Mobility Strategies
• Breathing Strategies
• Coping with Grief - Strategies for People Living with ALS
• How Can I Help? - A Guide for Family and Friends

Resources from Other Units

Making Sense Out of the Senseless - The McFeat Family ALS Journey - $15
This is the story of the 20 month journey of the McFeat family which ended with the death of Forrest McFeat. They have attempted to outline the physical and emotional family and individual journeys as completely as possible. They hope the story will be helpful to everyone, especially patients and their families, the medical profession, researchers, and government departments.

Someone You Know Has ALS, by Lois Clark - $5
A simple way to help children understand and cope with ALS.

Barrier-Free Travel: A Nuts and Bolts Guide for Wheelers and Slow Walkers

The second edition of Barrier-Free Travel: A Nuts and Bolts Guide for Wheelers and Slow Walkers, by Candy Harrington. Written by the editor of Emerging Horizons, the leading travel magazine for people with disabilities, this book is the definitive guide to accessible travel for those who use wheelchairs, walkers, canes, scooters, or simply have a slow gait. It is filled with advice on planning accessible travel by plane, train, bus, or ship and contains an extensive list of resources to further facilitate traveling with a disability.

The second edition expands on the first edition, once called the Bible of barrier-free travel by Ticked.com, to include updated information on dealing with increased airport security, a new chapter on children's travel issues, and a much-expanded section on cruises. Its an absolute must-have for any traveler with mobility limitations. For more information just click on the link below:

http://www.demosmedpub.com/book171.html
 

If you would like any of the resources above please email us here:  info@alsab.ca.