Manual For People Living With ALS

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The third edition of the Manual for People Living with ALS  is an excellent educational resource and tool. It helps readers to organize personal health information and stimulate discussion between patients, family members, and their health-care providers about managing ALS care and coping with an often rapidly progressive neurological condition. The Manual will be available in French later this year.

Director of services and education Jane McCarthy says, "This is a comprehensive resource that reflects input from a wide variety of healthcare professionals across Canada." The review committee included three neurologists, a physiatrist, two people with ALS and current and former caregivers. We are confident that the Manual will be perceived as a valuable resource, especially for those recently diagnosed with ALS.

What is covered in the Manual?

• An overview of ALS, signs and symptoms, research status
• Tips and tools for persons with ALS and family caregivers
• Where to go for help and support (local support information can be obtained from provincial ALS Societies)
• Disease management information about who makes up the ALS health-care team, mobility and independence, swallowing and nutrition, speech and communication, breathing and lung function, oral care, end-of-life issues, and advance-care planning
• Assistive equipment and activities of daily living
• Legal and financial considerations
• Education and support resources