ALS Web Resources

Canadian Health Network

International Alliance of ALS/MND Associations

The Web is a valuable source of information, but one must always take information on the World Wide Web with a grain of caution; not all information posted there is necessarily factual.

We would encourage you to read the following article to enable you to assess online health information: How to Assess Online Health Information - Five Questions to Ask.

The ALS Society of Alberta does not endorse and is not responsible for the content of external sites. Links will open in a new window.

Canadian and Other Provincial ALS Societies with web sites:

• ALS Society of Canada
  www.als.ca
• ALS Society of British Columbia
  www.alsbc.ca
• ALS Society of Manitoba
  http://www.alsmb.ca
• ALS Society of Ontario
  www.alsont.ca
• ALS Society of Quebec
  www.als-quebec.ca

Other ALS Organizations:

• www.alsmndalliance.org
  International Alliance of ALS/MND Associations This site includes a directory of ALS/MND organizations worldwide as well as research reports from the latest International Symposium on ALS/MND
• www.alsa.org
  The ALS Association of America
• www.lesturnerals.org 
  The Les Turner ALS Foundation Chicago ALS organization
• www.mdausa.org/disease/als.html
  Muscular Dystrophy America also supports people with ALS and funds ALS research
• www.march-of-faces.org raising awareness project
• www.alsforums.com volunteer-driven moderated support groups

Special Friends:

• Web SuperGoo - we would like to thank the Websupergoo group for the free use of their PDF generation utility.

Resources for children:
          March of Faces space for kids
          http://www.march-of-faces.org/KIDS/moe1.html

Primary Lateral Sclerosis - PLS: 

• Emedicine Article
• PLS support group by ALSforums
• Primary Lateral Sclerosis maintained by an individual with PLS

Basic information Sponsored by a research organization:

• Amyotrophic Lateral Sclerosis
• NINDS Amyotrophic Lateral Sclerosis Information Page
• NORD - Amyotrophic Lateral Sclerosis
• MDA US - ALS Division
• MDA/ALS Clinic... A Team Approach - Baylor College of Medicine, Texas 
• Neurology Channel
• University of Chicago

Basic information: 

• Amyotrophic lateral sclerosis (ALS) - commonly known as Lou Gehrig's disease - is a neuromuscular disorder
• The latest medical news and information for patients or friends/parents of patients diagnosed with ALS.

Research:  

• The World Federation of Neurology ALS Site
  www.wfnals.ca
• The Eleanor and Lou Gehrig MDA/ALS Research Centre
  http://www.columbiaals.org/
• The Robert Packard Centre for ALS Research at Johns Hopkins
  http://www.hopkinsmedicine.org/alscenter/index.cfm
• The ALS Therapy Development Foundation
  www.als-tdf.org/alstdf/
• The ALS C.A.R.E. Program is a voluntary, physician-directed program to improve outcomes for patients diagnosed with ALS
  www.umassmed.edu/outcomes/als/

Clinical Trial Database
          Mainly US. Search by disease
          http://clinicaltrials.gov

About Rilutek manufacturer site - http://www.alsinfo.com/index.jsp

Assistive Technology:

• www.tetrasociety.org
  A voluntary organization of Canadian and US engineers and technicians who help to solve your assistive devices challenges
• www.abledata.com
  Information on assistive technology and rehabilitation equipment sponsored by the US National Institute on Disability and Rehabilitation Research
• www.speakingdifferently.org
• Speaking Differently is a national organization for persons with dsabilities who communicate in different ways.

General Health Resources:

• http://chp-pcs.gc.ca/CHP/index_e.jsp
  Canada Health Portal Access to Authoritative and Trusted Information and Services
• http://www.canadian-health-network.ca/
  Canadian Institute for Health Information
• http://secure.cihi.ca/cihiweb/dispPage.jsp?cw_page=home_e
  The Canadian Health Network - Health Info for every body
• http://health.discovery.com/
  Discovery Channel Health Site
• http://www.medbroadcast.com/

Individual web sites:
          George Goodwin
           www.alsindependence.com
          Cheryl Mathews Prock
          http://www.alsnetwork.com

Hospice & Palliative Care:
         A Canadian Virtual Hospice
         www.virtualhospice.ca

Caregiving:

• How To Care
  www.howtocare.com
• CPCHA
  www.cpca.net
• Allianz
  www.allianz.ca
• Canadian Caregiver Coalition
  www.ccc-ccan.ca
• Family Caregivers Network Society
  www.fcns-caregiving.org
• Caregiver Network
  www.caregiver.on.ca
• Family Caregiver Magazine
• www.thefamilycaregiver.com