About Us

The ALS Society of Alberta is a non-profit organization dedicated to making each day the best possible day for people living with and affected by Amyotrophic Lateral Sclerosis (ALS). 

The Society supports people living with and affected by ALS across the province of Alberta, with the provincial office located in Calgary, and an office in Edmonton. The Society also provides services in the Northwest Territories when required. The individual must register with the Society in order to become a client.  

Board of Directors

The ALS Society of Alberta is governed by a Board of Directors. The Board is responsible for the work of the Society and for its standing in the community. The Board also actively pursues the mission, goals and objectives of the Society. 

The Society holds its Annual General Meeting in May of each year to approve the organization's audited financial statements for the prior year, elect the members of the Board, and manage any general matters or changes. Directors are elected to serve a one-year term. 

If you would like to participate with the Board of Directors, please contact our provincial office. 

Chair: Jan Desrosiers
Treasurer: P.J. (Pat) Merz
Secretary: Nancy Lyzaniwski
Director: Cathy Martin
Director: Jim McLaughlin
Director: Heather Haddow
Director: Dr. Chris White
Director: Dave Williams
Executive Director: Karen Caughey

Privacy Policy

The ALS Society of Alberta recognizes your right to privacy and pledges to protect it. The ALS Society is aware of our responsibilities under the federal Personal Information and Electronic Documents Act (PIPEDA). 

Information Collected

When visiting our website, our web server automatically logs (records) domain name and standard information about the operating system you are using, as provided by your web browser. This information is used for statistical purposes to help us manage our site, but does not identify you in any way.

We collect personal information about you only if you volunteer it in a survey and/or guest book and/or other "on site" registrations and/or make a donation. We may use this information to contact you for support purposes and to answer questions you submit to the site. All information is kept confidential. 

If you supply us with your mailing address online, you may receive periodic mailings from us with information about new programs and services or upcoming events, if you give permission to be contacted. 

If you do not wish to receive such mailings, please let us know by phone or by email. Please provide us with your exact name and address. We will then remove your name from our confidential list. 

Donation Information

The ALS Society uses Secure Socket Layer (SSL) encryption technology to ensure the integrity and privacy of the personal and credit card information you provide when you make an online donation or register for an event.

We maintain records all contributions to the ALS Society of Alberta. All information is kept private and confidential, and is stored in a secure location only accessible by authorized staff.

If you would like more information about the ALS Society of Alberta privacy policy, please contact alscommunications@alsab.ca


The ALS Society of Alberta is an independent, voluntary health agency and does not approve, endorse or recommend any specific product or therapy but provides information to assist individuals in making their own decisions.

Any reference to a commercial or non-commercial product, process, service or company is not an endorsement or recommendation by the ALS Society of Alberta. The Society does not endorse or recommend products, services, or manufacturers. The ALS Society of Alberta assumes no liability whatsoever for the use or contents of any product or service mentioned. 

The ALS Society of Alberta is not responsible for the contents of any "off site" internet information referenced by or linked to the ALS Society of Alberta's internet site. The inclusion of any link does not imply endorsement by the ALS Society of Alberta of the site. Use of any such linked website is at the user's own risk. 

By using the website, you agree to be bound by these terms of  use. If you do not agree with any of these terms, do not use this site. 


Our mission is to make each day the best possible day for people living with and affected by ALS. 

We achieve this by: 

  • providing support
  • facilitating the provision of care
  • promoting awareness 
  • helping find a cure
  • advocating for change

Values and Guiding Principles

Respect - we respect the rights, responsibilities and uniqueness of all people with whom we work and to those who receive services from the ALS Society of Alberta.  

Caring - we demonstrate compassion by listening and providing responsive and practical support. 

Service - we serve the needs of people affected by ALS in a fair and equitable manner. We are committed to the continuous improvement of our Society for the betterment of people affected by ALS. 

Accountability - we are responsible for our decisions and actions on behalf of the Society. We demonstrate due diligence in fulfilling our commitments to people living with ALS, their families and friends, our volunteers, donors and all others who help us support people living with ALS. 

Passion - we demonstrate a strong, emotional enthusiasm in our endeavours to make a positive difference in the lives of people affected by ALS. We communicate this enthusiasm to encourage others to share in our vision. 

Quality of Life - we strive to make each day the best possible day for people living with and affected by ALS by providing the highest level of support and services possible. 

Contact Us 

Calgary Office
7874 10 Street NE
Calgary, AB T2E 8W1

Phone: 403-228-3857 | Toll Free: 1-888-309-1111
Fax: 403-228-7752 | Email: info@alsab.ca

Edmonton Office
5418 97 Street NW
Edmonton, AB T6E 5C1

Phone: 780-487-0754 | Toll Free: 1-866-447-0754
Fax: 780-486-3604 | Email: societynorth@alsab.ca

To access our staff directory, click here