Hello, my name is Ralph Scott and the journey to my ALS diagnosis began with several years of health issues. My previous family physician dismissed issues due to me being a Type 2 diabetic and upon his retirement, I was lucky that Dr. Gradwell agreed to take me on as a patient. The first thing this new Dr. said to me was “go ahead and tell me how you’re feeling, I’m listening”. What a complete 180 as my previous physician would always say “listen to me”. During the introductory appointment, we reviewed my medical history and weight loss and he advised me that my calcium levels were quite high going back to 2007. Several months later after surgery for “hyperparathyroidism” the little toe on my right foot didn’t feel right. After consulting with Dr. Gradwell a referral to Alberta Neurological Centre was booked. In November 2021 after two consultations, I was diagnosed with ALS. At first, I was devastated, but the more I thought about it the more it made sense. My main concern is for my wife, Susan, and our family as I was worried about them and our future. As time goes by, I’m more accepting of my condition and what is in the future for us.
In my career in transportation, I’ve worn many different hats from driver/owner operator to administration of various companies. I ask myself if the petroleum and chemicals where we were required to top load the tankers without proper personal protective equipment played a part in ALS.
In 2018, Susan and I downsized and moved into a new home in Mahogany, which turned out to be a blessing due to the proximity of the ALS clinic at the South Calgary Health Campus. In 2019 our miniature Daschunds; Fiona & Kelci came into our lives, originally we had planned on only one puppy. Fiona chose Susan, and Kelci chose me. As we were leaving discussing which puppy we wanted the breeder messaged us asking if we would consider both puppies. Kelci was born with a congenital eye condition and she was concerned no one would adopt her and did not want her to be alone - we agreed and there’s not been a dull moment since! We are also very thankful that just prior to the diagnosis, my daughter, son-in-law, and granddaughter Aurora moved back to Calgary from Victoria. My son also lives in the city, and Susan’s son is in Vancouver, it’s wonderful to have such a great support system.
Upon being diagnosed, the support system through the ALS Clinic as well as the ALS Society of Alberta was activated within days. I am so thankful for everyone who has become part of my care team – all are so dedicated, compassionate, and sincere beyond belief. Currently, I’m undergoing Radacava treatments which require infusion for 10 days within a 14-day period followed by 14 days off. I am also participating in a clinical trial through the University of Calgary with Berchman, Cassidy, and Janet.
There are two things in life that I believe, one is that the journey of your life is a path already planned for you. Second, a colleague once said to me that “adversity doesn’t build character, it brings it out”, I believe this to be so true. Throughout our lives, we experience many forms of adversity and grow and learn from it. It would be easy for me to be in a room with the lights turned off and hugging my knees rocking back and forth, this would accomplish nothing. I choose to accept the challenges I’ve been dealt and be forever grateful for all that I have in my life rather than mourn what I’ve lost.