Research Blog
This page brings together the latest research updates, stories, and insights from across Alberta’s ALS Research Network.
Research plays a critical role in improving outcomes for people living with ALS and moving closer to a world without this devastating disease.
The ALS Society of Alberta supports and shares research that advances understanding, improves care, and contributes to the development of new treatments. Much of this work is strengthened through collaboration with researchers and clinicians across the province, including initiatives like the Alberta ALS Research Network (AARN).
Here, you’ll find:
- Updates on ALS research developments and breakthroughs
- Highlights from Alberta-based research initiatives
- Stories that connect research to real-world impact for individuals and families
- Insights from partners, clinicians, and researchers
Stay up to date with the latest in ALS research, including work connected to the Alberta ALS Research Network and other collaborative efforts across the province.
Blog Posts
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The Role of Lived Experience in ALS Research
When I started as AARN project manager in May 2025, I knew that bringing researchers together with members of the lived-experience community would be one of the most important parts of my job. In September, we held our first-ever AARN Annual Meeting, and one-third of the people in the room were those with lived experience. That tells me that the Alberta ALS community is just as passionate about research as I am. From start to finish, the meeting was full of engagement from all facets of the ALS space. We opened with a keynote from Dr. V. Wee Yong, who…
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Applications Now Open for $700,000 in ALS Research Funding
Earlier this month, AARN announced the call for applications for two new research awards – an award for Established Programs and another for Early-Stage Research. When deciding what awards to create over the last 18 months since AARN got up and running, the Steering Committee has relied on some guiding principles. First, AARN’s Founding Priorities: And, second, AARN’s Funding Pillars: The Established Program Award speaks directly to many of those core priorities. Established ALS research programs are the most likely to be relevant to people currently living with ALS in our province, which is a deeply important part of our…
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Rural Voices to Shape ALS Care
As the Project Manager of the Alberta ALS Research Network (AARN) – an initiative that brings together the ALS Society of Alberta and the brightest ALS minds in the province to effectively and efficiently fund homegrown-research – one of my top priorities is bridging the gap between the ALS community and the clinicians and researchers working to end this disease.