Do you need support as an ALS caregiver?
Caring for someone living with ALS can be overwhelming. ALS Caregivers often take on many roles at once, from coordinating care and navigating complex systems to providing emotional and day-to-day support, all while managing their own well-being.
If you need help as a caregiver, we are here for you.
The ALS Society of Alberta supports ALS caregivers across the province by helping to:
- Navigate Alberta’s healthcare system with guidance from Client Services Coordinators
- Advocate for individuals and families as care needs change
- Provide ongoing emotional support through regular check-ins, home visits, and virtual connections
- Share trusted information about ALS, available services, equipment, home care, and community resources
- Connect ALS caregivers to referrals and support groups to reduce isolation and build connections
Our goal is to ensure ALS caregivers feel informed, supported, and never alone throughout the ALS journey.
COMPASS for the ALS Caregivers.
The ALS Society of Alberta is proud to offer the COMPASS for the ALS Caregiver Program, tailored specifically for ALS caregivers in Alberta, in partnership with Caregivers Alberta.
This award-winning program offers structured 4-week sessions with 2.5-hour virtual workshops led by experienced facilitators. Each session includes up to 12 participants, and all fees are covered by the ALS Society of Alberta.
Our goal is to help Alberta’s ALS caregivers build resilience, find balance, and feel supported every step of the way.
Support groups.
The ALS Society of Alberta offers both online and in-person support group meetings to ensure accessibility for individuals and their loved ones across Alberta.
The ALS Society of Alberta offers support groups and information sessions to help people living with ALS, their families, loved ones, and caregivers.
Client Support Groups
These give clients space for peer connection, emotional support, and resource sharing.
ALS Caregiver Support Group
These provide ALS caregivers with information about supporting a loved one living with ALS.
PLS + Kennedy’s Disease Support Groups
This provides individuals living with PLS or Kennedy’s Disease with space for peer connection, shared understanding, and mutual support.
Staying in Touch Support Groups
These keep those who have experienced an ALS loss connected with their support network.
All support groups and information sessions are provided free of charge. They are offered in casual group settings that allow everyone to share their experiences, information, and support.
Please note: you or your loved one must be registered with the ALS Society of Alberta to attend.
If you would like more information about support groups, please contact us: Provincial Office | 403-228-3857 | info@www.alsab.ca
The Debi Lefaivre ALS Youth Champions Fund.
Formerly known as the Support for Champions Program, the Debi Lefaivre ALS Youth Champions Fund provides funding to children in Alberta who have had a parent or guardian affected by ALS – specifically for programs and activities that they may not otherwise be able to afford due to the financial strain of an ALS diagnosis.
Heather’s story
I longed for a community that understood not only the profound grief I was feeling but also the uniqueness that ALS brings into our lives.
Heather reflects on caring for her daughter through ALS, the deep toll of caregiving, and how finding an ALS-specific grief support community helped her feel understood, supported, and less alone in her journey as an ALS caregiver.
Help us make an impact.
Even the smallest donation can make a large impact on somebody affected by ALS.
