2019 Betty’s Run for ALS
Sunday June 9, 2019
North Glenmore Park, 9 a.m.
2019 Betty’s Run Ambassador: Ken McIsaac
“I am honoured to be the Ambassador for the 23rd annual Betty’s Run for ALS and to share my story. As can be typical of ALS, diagnosis can be challenging. In July 2018, I was experiencing shortness of breath and had significant weight loss. I was having painful muscle spasms in my diaphragm and heart palpitations. I spent the next three months with various specialists attempting to make a diagnosis. In mid-October I was scheduled for a stress test that was monitored by an internist. During this test, he observed symptoms that convinced him I had ALS. On November 7, 2018 an EMG conducted by the ALS Clinic at South Health Campus confirmed the diagnosis.
The ALS Clinic has been outstanding. The team there has been very helpful and supportive, and have even worked with me on an alternative drug therapy from Japan that could slow down the progression of the disease and increase my life expectancy. However, there is no cure currently for ALS; all that I can hope for is a delay in the progression. Shortly after being diagnosed our family was introduced to the ALS Society of Alberta in Calgary. We attended a potluck event before Christmas and met several people with ALS. We were so impressed with the positive attitudes of people filled with acceptance and resilience. It was also a reminder of the necessity to provide support and services for those battling ALS.
Receiving the initial diagnosis that day in October and sharing that news with my wife and son were the most gut wrenching and emotional events of our lives. Although I am weak and short of breath, the more prominent debilitating symptoms have yet to manifest themselves. We are blessed with many thoughtful and caring friends.
My family and I look forward to being part of Betty’s Run for ALS this June to help raise funds and awareness for this important cause.”
Betty’s Run for ALS
Betty's Run for ALS celebrates, promotes and channels hope for those affected with ALS, their families and their friends.
Over the past 23 years, Betty's Run has raised over $7 million due to the generous support of donors and participants. Of funds raised, 60 per cent stay in Alberta to support those currently living with ALS through equipment and client services. The remaining 40 per cent of funds support ongoing research into identifying the cause and cure for this devastating disease.
Who is Betty?
Betty Norman was an active 58-year-old Calgarian when she was diagnosed with ALS in August of 1996. Betty's courage and determination to make a difference was the driving force behind the June 1997 "This One's for Betty" walk/run. Sadly, Betty passed away within 11 months of her diagnosis and two weeks after the event that she inspired took place.
Determined to continue Betty's unwavering spirit, the organizing committee unanimously decided to hold an event every year in Betty's memory and honour. They also wanted to raise much needed funds to support the many other Albertans currently living with or affected by ALS. This is how the annual Betty's Run for ALS was born.