Fuel Discovery for ALS Research in Alberta
This Giving Tuesday, your donation will help accelerate ALS research right here in Alberta by funding the breakthroughs that bring us closer to faster diagnosis, better care, and ultimately, a cure.
Thanks to Alberta’s incredible community, the $25,000 matching gift has already been fully unlocked. Now, every donation continues to push us toward the finish line.
Your contribution will support innovative projects through the Alberta ALS Research Network (AARN) and advance specialized studies like the Jennifer Prest Bulbar ALS Fund, which focuses on improving early diagnosis for people with bulbar-onset ALS, a form of the disease that affects speech and swallowing.
Every dollar fuels discovery. Every discovery fuels hope. Together, we’re building a future where ALS is understood, treatable, and eventually, preventable.
Where Your Gift Goes
Your gift today builds the foundation for tomorrow’s breakthroughs.
Real Lives, Real Impact
Every donation contributes to understanding how ALS progresses and improving the diagnostic journey to ensure people living with ALS and their loved ones receive the care and answers they need.
Collaborative ALS Research in Alberta
Gifts beyond the $25,000 match will support projects through the Alberta ALS Research Network (AARN), connecting scientists, clinicians, and patients to drive innovation across Alberta’s universities and ALS clinics.
Early Diagnosis & Voice Research
Through the Jennifer Prest Bulbar ALS Fund, researchers like Dr. Gordon Jewett (University of Calgary) and Dr. Yana Yunusova (University of Toronto) are developing tools to identify bulbar-onset ALS earlier and helping people maintain their ability to communicate and receive faster care.
All matched donations (up to $25,000) support the Jennifer Prest Bulbar ALS Fund. Funds beyond the match continue fueling Alberta-led ALS research through Alberta ALS Research Network (AARN).
Upcoming Events
Past Events
November 28, 2025 11:00 AM MST
Research Webinar: An Update on The Jennifer Prest Bulbar ALS Fund
Join Dr. Yana Yunusova and her team, along with Dr. Gord Jewett for an update on Bulbar ALS research supported by the Jennifer Prest Bulbar ALS Fund through the Alberta ALS Research Network and the ALS Society of Alberta.
Learn how their studies are improving early detection, diagnosis, and care for people living with bulbar-onset ALS by exploring diagnostic timelines, care prediction tools, and AI speech biomarkers.
November 26, 2025
An Evening of Storytelling and Strength: A Conversation with Kelsie Snow at cSPACE King Edward
“Even in silence, our stories have the power to speak.”
An inspiring evening with Kelsie Snow, writer, advocate, primary caregiver and wife of Calgary Flames assistant general manager Chris Snow, who lived with ALS with grace, courage, and humor until his passing in 2023. In this special Giving Tuesday storytelling event, moderator Christina Frangou guided a conversation about love, loss, legacy, and the power of voice. Alberta’ ALS community came together to celebrate resilience and science that helps preserve what makes us most human: connection.
November 19 & 20, 2025
Book Club: Stories of Strength
Former and current ALS caregivers came together for an ALS Society of Alberta Book Club to foster community and share common experiences. This book club read Emma Heming Willis’ newly-released memoir, “The Unexpected Journey: Finding Strength, Hope and Yourself on the Caregiving Path,” about life with her husband, actor Bruce Willis, after his frontotemporal dementia diagnosis. This discussion series invited current and former ALS caregivers to share stories of strength, resilience, and reflection.