It’s been nearly four years since I was diagnosed with ALS, and our life has been an emotional rollercoaster. We have felt frustration, hope, anger, and joy, all rolled into one. I’ve learned to give myself permission to feel it all and to hold space for my grief and sadness which are natural responses to the changes I am experiencing. Journaling, talking with friends, and connecting with Susan, my wife, have all helped me process those emotions. Remember, there's no "right" way to feel, and accepting that truth has brought me closer to accepting my ALS.

I’ve found strength and agency in focusing on what is still within my control. From adapting our home to suit my needs, to discovering new hobbies that bring me joy, and setting personal goals, these actionable steps help me feel empowered. I have advocated for myself in medical settings, explored assistive technologies, and created a daily routine that supports me and prioritizes my well-being.

My girls (our two dogs), and Susan help me stay grounded in the present moment and cultivate inner calm. For me, fostering a positive outlook doesn't mean ignoring difficulties. It means finding moments of gratitude or joy to celebrate amid the challenges. These moments matter. Meaningful interactions like sharing a laugh with a loved one, admiring the beauty of a sunset, or maintaining close connections with loved ones are all vital.

I’ve learned to communicate more openly with those around me. Being honest about my needs, feelings, and experiences has strengthened bonds and helps my loved ones understand how to best support me. At the same time, I am mindful of setting boundaries and taking time for self-care when needed.

Relationships are a source of immense strength, and nurturing them has enhanced my emotional well-being. With the support of the ALS Society of Alberta, I’m fortunate to have resources that have made this journey a little easier. And for that, I’m deeply grateful.