At the ALS Society of Alberta, we are committed to advocating for people living with ALS, their loved ones, and caregivers. Many in our community are medically fragile and face greater risks from infections such as influenza and COVID-19. While we respect that vaccination is a personal decision, our focus is on ensuring that those who want the vaccine can access it fairly, without barriers, and with recognition of their unique needs.
Why We Raised Concerns
When the Alberta Government first announced its Fall 2025 COVID-19 vaccine rollout, ALS was not explicitly listed in the Phase 1 eligibility criteria. Even after the criteria were later expanded, we asked officials to ensure that ALS is explicitly recognized so that no one is turned away at the clinic.
We are also deeply concerned about:
Reduced access.
Vaccines are no longer available through pharmacies, which were often the most practical option for people in rural or remote areas, or for those who are homebound.
Costs:
Alberta is the first province to introduce out-of-pocket costs for people outside of Phase 1 ($100 per dose in Phase 2). Quebec has since followed, but no other provinces have taken this approach.
Caregivers left out:
Family caregivers, who provide most ALS care at home, are not currently prioritized for publicly funded vaccines. Protecting caregivers is essential to protecting people living with ALS.
What We Asked Government
We have pressed for clarity on several issues:
Will ALS be recognized as eligible under Phase 1, and how will this be communicated?
Why are caregivers excluded when their health is critical to protecting people living with ALS?
What supports will be available for rural and remote clients who cannot travel long distances?
How will Albertans who cannot afford the vaccine be supported?
What We Know So Far
Registration:
People living with ALS should self-declare under the “disabilities” category when booking.
At the appointment:
A public health nurse will confirm eligibility. We have been told it is very unlikely ALS would not be recognized for Phase 1.
Homecare clients:
Those who are homebound will be eligible through Homecare, though details are not yet finalized.
Our Commitment
We will continue to speak up to ensure that people living with ALS and their loved ones are not left behind in public health decisions. Our advocacy is focused on equitable access and clear communication so you can make the choices that are right for you.
If you have questions about the vaccine or your eligibility, please reach out to us. If you are concerned about the changes to Alberta’s Fall COVID-19 Immunization Program, we encourage you to contact your MLA to share how these decisions affect your family and loved ones.
Find your MLA Here: https://www.assembly.ab.ca/members/members-of-the-legislative-assembly