Making it Possible

June 15 - Leading Edge Mobility

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Today we are featuring one of our vendors, Leading Edge Mobility for day 15 of ALS Awareness Month.

Leading Edge Mobility, located in Lethbridge, is one of the vendors the Society has been working with for many years.  They deliver, pick up and maintain our equipment that is on loan to clients. The Leading Edge Mobility team is very knowledgeable and responsive to the needs of clients.  Leading Edge Mobility works with our equipment team and Client Services staff in providing the right piece of equipment to best fit the needs of each client.  Their care and understanding of client needs is greatly appreciated.  Responding in a courteous and timely manner helps make each day the best possible day for clients and their families.  With their support we are helping clients Make it Possible.

To learn more visit www.leadingedgemobility.com

June 14 - Jim Park

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On Day 14 of ALS Awareness Month, we are sharing Jim Park’s Making it Possible story.

“My name is Jim Park and I was diagnosed with ALS on April 4, 2018. That day changed mine and my family’s life forever. My words were starting to come out slurred and I did not know why. Fast forward thirteen months and I am reminded daily of the severity of this horrible disease. In November of 2018, I stopped driving, and eating or drinking anything by mouth. I am also on breathing assistance during sleep and my hands don’t really work anymore. I can no longer speak at all and use an iPad with text to voice apps on it. Fatigue is one of the hardest things to deal with as I ‘run out of gas’ at the most minimal movements. My family helps with everyday living challenges and my wife is exceptional at keeping me grounded and happy.

I am happy. I’m happy because I have my family and friends and the ALS Society to help me navigate through this time in my life. The ALS Society has introduced me to many people that know exactly how I feel and we can communicate our thoughts and issues. I can borrow whatever equipment I need and the Society is there immediately to make sure everything is in order – how cool is that?! My family and I may be living with ALS but the Society makes things so much better and for that, I can’t thank them enough.”

Thank you so much, for sharing your story and your kind words about the Society. We are always so grateful to hear stories about how the Society can help.

June 13 - Len Landry

We are so excited to share Len Landry’s Making it Possible sotry for day 13 of ALS Awareness Month.

“I was diagnosed with ALS in September 2013. I had symptoms for about a year and wasn’t too sure what was going on. It is amazing how much love I was shown that I didn’t expect from people from my past and present. 

I grew up having fun, with a sense of humor and I’m kind of crazy. That’s just part of my DNA and that never changed, even since being diagnosed with ALS. Like I told my daughter ‘rough and tough and hard to bluff and ‘you gotta stay positive’, so I may as well practice what I preach.  When I was still living at home I wrote ‘you gotta stay positive’ on her bathroom mirror with her lipstick to remind her, it’s going to be okay.

I know I am in the best home now that I can be in at the Good Samaritan. The staff here are great and I feel pretty lucky and blessed to be here. My favourite time is lunch/dinner where I can be the “class clown” and make other’s laugh. Not to mention our social group, we call ourselves “The Southside Wheelers” as we all like to get out and about watch some sports and still go for the odd beer. There is no judgement as we all have different diagnoses.

I can’t be any more grateful than I am for the ALS Society and everything they have done for me through all their support and equipment provided. I feel very blessed.”

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June 12 - Les Bodnarchuk

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On day 12 of ALS Awareness Month, we are sharing Les Bodnarchuk’s Making it Possible story.

In November 2016 I started experiencing some loss of mobility in my right foot.  In August 2017 I was diagnosed with ALS.  Since then I have been attending the ALS Clinic at South Health.  The entire staff at the ALS Clinic are there with me every step of the way and provide tremendous support in helping with the changes.  As the disease progressed, I realize how fortunate I was to be supported by the ALS Society.  At each turn of events the ALS Society provided valuable pieces of equipment, advice, and emotional support.   This helped me maintain quality of life and allowed me to stay in my home with the help of my wife, Jean.

Last December, with the support of the ALS Clinic, the ALS Society of Alberta and the ALS Society staff in Ottawa, I was able to attend my daughter’s wedding in Ottawa.  As an added bonus, I was able to walk my daughter down the aisle and have the first dance.  Thank you everyone for helping create a beautiful memory.

Early on in this disease, I promised myself that I would not be bitter or angry.  I try not to look back on my life and activities. My world and capabilities are shrinking.  Facing each day brings challenges that are mentally and physically exhausting.  I chose to view my daily life through a positive lens.

This year for Betty’s Run, I chose ‘Making Lemonade’ as my team name.

There's an old adage that says, ’When life hands you lemons, make lemonade’.

It is a phrase that gets used and said without much depth or detail. If you do nothing, the lemons will dry up, shrink and go moldy.  Or you can open it up and squeeze every drop out of it.  For me, I could not do this myself.

I have been humbled to the core of my heart with support in helping me ‘make lemonade’.  

ALS is causing a moving target of physical and emotional needs.  It has taken a large village to provide the support and equipment required for me to make the most of each day.

June 11 - Marjorie Ebanks

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Today we are featuring Marjorie Ebanks and her #MakingItPossible story, as told through her family.

“Even though Marjorie lost her fight to ALS on March 15, we believed she would want to focus on what was made possible for her while alive.  What we believe would be her own words, we think she would write something like this:

‘While living with this disease, I tried to focus on the blessings in my life including all the things that seemed impossible but made possible.  Friends rented a van so that I was able to have a manicure and pedicure and lunch with them in Sylvan Lake.  A voice device enhancement device given by the ALS Society helped increase the volume of my voice so my grandkids could hear me when I read to them.  An electric wheelchair was also provided by the ALS Society to help me gain some form of independence.  Meals were made by friends and family so my husband Owen, could attend to me.  Faithful friends stayed with me on Thursdays so Owen could play one his favourite games, dominoes!  Friends from church built me a ramp so that I may continue to visit my grandkids in their own home. And rides were provided to spend time with my brothers and sisters at the ALS support group.  I looked forward to those meetings to share and relate my new friends. 

So many things were made possible for me and the above examples were just only a few.  It allowed me to continue to live a life of grace and dignity.  Thanks to the ALS Society for their support and may God richly bless your organization for the support you provided me.’ “

Thank you so much to the Majorie’s family for sharing this beautiful story about Marjorie.

June 10 - Adam Rombough

Today, on day 10 of ALS Awareness Month, we wanted to take some time to share a video and honour our 2018 Edmonton Walk Ambassador, Adam Rombough. Adam’s “A-Bomb” team broke fundraising records and inspired the community to come together to channel home for a future without this disease. This video captures Adam’s Making it Possible story and the inspiring outlook he had.

Thank you so much to the Rombough family for continuing to carry Adam’s legacy and to Hoopla Media for creating this remarkable way to tell Adam’s story.

Link to video: https://www.youtube.com/watch?v=uqtr1bbRNfQ&feature=youtu.be

June 7 - PLS & Kennedy's Group

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Today on day 7 of #MakingItPossible, we are featuring the Calgary PLS & Kennedy’s group. This support group has been around for 15+ years and the group is always fun, sharing so much wisdom and of course, laughter.

 

Here are some comments from the members of the group:

 

Corey  - “Once a month I come to spend time with a very special group of people! This group of people that even through their own adversities are able to resonate a sense of understanding, compassion, love, and acceptance in such a positive, uplifting, and safe environment,” he says.  “The group is something that I look so forward to being a part of. This group of people, truly makes a difference in my world, and all that they touch. Thank you to the ALS Society for bringing us together. Life is a journey, not a destination.”

 

Karen – “Support and understanding from this group helps keep me grounded.”

 

Willie & Sylvia – “The support group meetings are so uplifting and it’s good to know someone has our backs.” “Thank you so much to the ALS Society of Alberta for the walker, it is so helpful in the morning.”

 

Thank you everyone for sharing your thoughts and comments with us for this Making it Possible story.

June 6 - Gail Rauw

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Today we are featuring the inspiring story of Gail Rauw on day 6 of of ALS Awareness Month.

My name is Gail and this is how my story about living with ALS started. I first noticed slurred speech in the fall of 2017. I kept hoping it would disappear but it slowly progressed until I decided to take it up with my GP in June 2018. By July 20, 2018 I was told that I definitely “met the criteria for a diagnosis of ALS”. On an ironic note, I spent 30 years in a research laboratory at the U of A studying brain neurochemistry so I knew exactly where I was headed. With the support of my family, we started to roll with the punches and get on with living. We hurried up and did some travelling while I was still mobile with trips to Japan and California in 2018. In March of this year my two daughters organized a surprise trip to Maui for a vow renewal. Maui has always been one of my favourite holiday destinations and my family often heard me say that I would like to renew my vows on the beach. Twenty nine family and friends travelled to Maui for the special day. We made some great memories. My family and friends have been most supportive. My husband drives me to my Radicava infusions (although I can still drive myself). He has worked the casino fundraiser and will be doing the Edmonton Walk to End ALS with my daughter and granddaughter. My other daughter comes from Victoria for every clinic visit. For her 6th birthday party, my granddaughter asked for donations to the ALS Society instead of birthday presents. and raised over $600! I am fortunate to have the ALS clinic at the U of A. With the help of their speech pathologist and ICAN at the Glenrose, I have banked my speech as well as done some message banking for the future. The ALS Society downloaded the speech app I need to my iPad and I am ready to go when my voice is gone. The ALS Society is a blessing! They have helped me navigate the brutal waters of an ALS diagnosis and focus on what I can do and not on what I can’t!

June 5 - Patricia Latremouille

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Wow! It’s already day 5 of ALS Awareness Month. Today we are featuring Patricia Latremouille.

Patricia was initially diagnosed with PLS in 2013 but in 2014 her diagnosis changed to ALS. Patricia’s message to others living with ALS is “It’s possible to live your life”. Her message is one of creating possibilities, which fits so well into our #MakingItPossible campaign.  Patricia wants others living with ALS to know that it’s possible to continue to have new experiences and find ways to cope and adapt as ALS progresses.

Patricia stays active in the community by regularly travelling across the city to her daughter’s home to spend a day a week with her grandchildren and uses Access Calgary services to make these trips along with other outings in the city. When her family visits from the UK, day trips to the Calgary Zoo, the Calgary Stampede, and Banff Hot Springs have all been on the itinerary! Just a few weeks ago Patricia went camping with her husband and friends in Radium which included a visit to Radium Hot Springs.

She says, for her, having the right equipment such as a power wheelchair makes the change in function less noticeable because it enables her to continue to have new experiences with family and friends.  Patricia regularly attends events supporting the ALS community such as the ALS Support Group and Betty’s Run. She always brings her genuine interest in others, her belief in possibilities, and her smile!

Thank you Patricia, for sharing your experience with us!

June 4 - Sylvia Tensfeldt

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On day four of ALS Awareness Month, Sylvia Tensfeldt shares her inspiration with us.

“Receiving a diagnosis of ALS in any of its many forms has a devastating effect on anyone and everyone in their family.  Suffering its effects each day is much like a death by a thousand cuts.  Each day or week you notice yet another activity, which you have so long enjoyed, has been taken from you.  Without the support of family and the ALS Society, this would be so much worse.  The Society has been instrumental in ensuring that I, and many others, can continue to reside in our homes and lead a somewhat independent life.

                The support of the Society and its members has also shown me that there are talents that have been silenced or taken which I think should be honoured.  Before my limited artistic talents are taken from me, I want to produce something that could perhaps provide the Society with much needed support to continue their good work and to also honour talent that I saw in other members. 

                I am therefore taking the opportunity to highlight a photo taken by a member that resonated with me.  I have designed an embroidery project that I hope to complete by late fall which represents the feeling that while our physical abilities may be silenced, the spirit can still soar.  In return, I hope that people will support the Society by sponsoring this project with pledges.  The entire picture contains approximately 40,000 stitches and my goal is to raise at least $1 per stitch.  There is a link attached where you could pledge amounts to your ability (i.e. 1 cent per ten stitches ($40.00).   Once completed, I will auction the framed work to encourage further funds.  Please help me achieve my goal for project I have called “The Spirit Still Soars”.”

For more information and to donate to Sylvia’s project, click here:  https://www.alsab.ca/news/2019/5/30/stitchin-for-support

 

June 3 - Flawrence Szymanski

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On this third day of Making it Possible - A quote from Flawrence Szymanski.

“It’s hard when you are told you have ALS. I still do my count cross stitch, ceramics, and stain glass. You have to take it one day at a time. I am lucky that I have a great husband, family and friends. I am still able to go for coffee with my friends, go to the movies and play cards. It’s important to do the things you can do.”

June 2 - Belle Dezutter

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My name is Belle and I was diagnosed with ALS March 9, 2018. I was not surprised at the news because ALS has taken the life of my 2 brothers and my niece has been diagnosed with ALS two years ago. I felt a sense of relief after the diagnosis because now I could move forward with my life and take on the challenges and new experiences in this new chapter of living. I decided from that day forward I was going to continue living my life with courage and a smile so I can see what's around the next curve while trying to maintain a positive outlook even in the event of immobility. Immediately after my diagnosis I went into a phase 1 clinical study for a new drug being tested on study patients with Familial ALS carrying the SOD1 gene. It was conducted at The Montreal Neurological Institute and Hospital under the care of Dr. Angela Genge the director of the ALS clinic at the Neuro. I went to Montreal nine times in the span of eight months and received the trial drug (B11B067). It is through research and clinical trials around the world that someday there will be cure to end this fatal disease. We must prepare ourselves mentally for what we need to do from day to day. We can perform the most command task for the glory of GOD, even in challenging situations. It was important to me to find a great support group because you learn and teach each other and also become friends with fellow people with and without ALS. I found that support with the ALS Society and my team of doctors and professionals at the ALS clinic. With the amazing help and support from the ALS Society I can tell myself "the sky’s the limit" with some readjustments and some limitations in my everyday living. They also show me the true meaning of HOPE (Heart Open Please Enter) because we need people to be there for us to laugh with and to cry with. I now can live each day in what is my new normal on life’s terms. I am a wanderlust and I have a strong desire to wander and travel this beautiful world. And I now travel differently through the use of a wheelchair/walker that conserves my energy and prevents my falling. I know someday this disease will take my breath away physically but "Life is not measured by the number of breaths we take, but by the moments that take our breath away".

Good bye isn't forever, it’s see you later.

June 1 - Dave Williams

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June 1 officially marks the beginning of ALS Awareness Month across Canada.  To honour our incredible community, we will be sharing a story each day from someone living with or affected by ALS.

Upon being diagnosed with ALS, Dave joined the Board of Directors of the Society in 2007 and served as a board member for twelve years. Dave led with wisdom, expertise and compassion. During the most significant growth of our organization, Dave’s leadership was instrumental to the Society. 

 

One of his many achievements was the awareness he brought to the Alberta Government about the ALS cause. He brought the voice from a family perspective to all levels of Government including Ministers from various portfolios.

We are so honoured that Dave dedicated his time and energy in making a difference in the lives of people living with ALS and their families.

We will forever remember the difference Dave made in the ALS community.

June 30 - Colleen Kovaluk

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On our last day of our #MakingitPossible stories we spoke to Colleen Kovaluk who lives with ALS. Colleen was diagnosed with ALS in December 2015 and has been attending the Edmonton coffee group with her husband, Peter.

"We love coming to the ALS coffee shop because of the great treats they provide. Yummy!" Colleen is known at coffee group for providing a warm welcome to new members with open arms.

Colleen's family members are also very active with the ALS community, her sister Melanie who lives in Lethbridge attends the Lethbridge WALK yearly. Her niece Nicole who got married last September made donations to the ALS Society in lieu of party favours at her wedding in Calgary.

Colleen and Peter also love spending time with their friendly dog, Kona who is just as warm and pleasant as his owners. Thank you Colleen and Peter for being such a bright presence at each month's coffee group.

June 29 - Board of Directors

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The Board of Directors of the ALS Society of Alberta is an incredible group of volunteers that generously give their time and expertise to guide our Society and the work we do.

They are people that have personally been touched by ALS so they know the depth and intensity of this disease. Tara Pentney, Cathy Martin, Gord Banting, Heather Haddow, Paul Leroux, Dave Williams, Rochelle Maitripala and Nancy Lyzaniwski. They are all #MakingitPossible every day.

This year, we would also like to thank and congratulate Jan Desrosiers for an incredible 15 years on our Board. Thank you for all that you have done and the difference you made during your time on the Board. 

Behind the scenes, they each dedicate countless hours to the work we do, attend numerous events each year and lead our organization with passion and commitment.

Thank you to all of you. We are so very lucky.

June 28 - Corey Kjorsvik

The ALS Society of Alberta is proud to support those affected by PLS and Kennedy's Disease. Today, Corey Kjorsvik is helping to raise awareness about Kennedy's and how he keeps #MakingitPossible to attend support groups in both Calgary and Edmonton. 

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"In 2002 I was diagnosed with Kennedy’s Disease (Spinal Bulbar Muscular Atrophy) at the age of 39. It is a rare genetic neuromuscular disease that affects about 1 in 40,000 people worldwide. It is a slow wasting of the muscle mass with no cure. Going back to 1997, I was feeling signs of weakness in my arms and trouble walking long distances. A couple really bad choking fits made me realize that something was not right and that I needed to see a doctor about it. It has been misdiagnosed in the past as ALS, and I can still remember vividly the thoughts going through my head at the time I was being tested, and what my future would hold.

As my symptoms progress the ALS Society has become such a blessing to me. They have taken me under their wings and given me so much support. I have always had the love and support from my family and friends but was never able to find that outlet where I could communicate and share freely with others the same issues, symptoms, feelings that I was going through. It was while attending the ALS clinic in Calgary’s SHC for the first time that made me aware of the fact that I was being surrounded by so much support, and that I needed to stay involved.

Now as I move forward, I attend their monthly support group meetings in both Calgary and Edmonton. I look so forward to these meetings. The atmosphere is that of understanding, support, and caring, in such a positive environment. Being able to share with others my own personal knowledge and obstacles and understanding their own, I believe helps to better all of us in moving forward. The ALS Societies lending program has also been so helpful in helping me overcome the obstacles I encounter with mobility. I have now completed my second annual Betty’s Run for ALS in Calgary and am overwhelmed by the outpouring of people that attend in support of their loved ones and friends. Our team The “Kennedy’s Clan was able to raise over $1100.00 this year.

Being able to reach out and tell your story, I believe is so important in getting the word out about ALS and looking for that cure. Research I understand through the ALS Society is really progressing right now and hopefully in the process, they will stumble upon and find a cure for Kennedy’s Disease. To everyone that suffers from this terrible disease of ALS, and to those that work and volunteer tirelessly in support of the ALS Society, I say to you all that for who you are and what you do, 'you do truly make a difference in everyone’s life'"      

 

June 27 - John Tuckwell

Today we are celebrating John Tuckwell and his Tuckwell’s Travellers Team in the Edmonton WALK for ALS. John’s family is incredible committed to #MakingitPossible to attend the WALK each year, and do an exceptional job fundraising. In 2016, the Tuckwell Travellers were the first-ever recipient of the James H. Brown Edmonton WALK for ALS Team Challenge, raising $46,495!

John’s sister, Cathy, travels from Toronto to attend the WALK, and his parents, Linda and Paul travel from BC.

Thank you to this incredible group of fundraisers for coming together each year to honour John, and to channel hope for a future without ALS

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June 26 - Fred Gillis

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On day 26 of ALS Awarness Month, we wanted to honour Fred Gillis who lived with ALS and was our Edmonton WALK Ambassador in 2017. Fred's wife, Lana wanted to share a few words about Fred and his #MakingItPossible story.

"Fred's commitment was passionate and strong, he was all about finding a cure, he knew it was too late for him, but didn't want it to be too late for others. Fred was still able to participate in research trials, even though we moved to another province. He was all in, and didn't want ALS to win...and in his mind he won!"

Team Gillis made it to the top 10 fundraisers in Ontario and family members supported his team in our Edmonton Walk.

Lana continues to stay connected to the ALS Society.

"Everyone is so supportive of each other, this never ends and will always be the way it is. Death ends a life, but not a relationship. I only have two words to describe the ALS Society, love and support."

Thank you Lana, for sharing with us.

June 25 - Melanie & Marcie Pruden and Nicole Tymchak

Today we wanted to highlight some of our amazing volunteers for day 25 of ALS Awareness Month. Marcie & Melanie Pruden and Nicole Tymchak coordinated the first ever Drayton Valley WALK on June 16 and it raised over $20,000! Thank you ladies for #MakingItPossible for our clients and everyone who has been affected with ALS.

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"We were introduced to the ALS Society of Alberta in January of 2015 when our mom, Audrey Pruden, was first diagnosed with ALS. We had no idea what ALS was or what to expect with it, let alone that there was a Society and what it did for people. We soon learned firsthand what the support of the ALS Society was all about! At Mom’s second appointment we were given a transfer wheelchair, through the ALS Society’s Equipment Loan Program, just in case we went somewhere with a lot of walking and Mom got tired. By our third appointment, just 3 short months later, we were dependent on that chair for any length of walking.

Once everyday tasks started to become a struggle for Mom, and a struggle for us trying to help her, the Society stepped in and supplied us with whatever we needed to make it possible for Mom to comfortably continue to do what she loved. At the drop of a hat, the Society had whatever equipment we needed on our door step and made sure Mom was happy and comfortable with it. Without the ALS Society we know that we would not have been able to have Mom at home for nearly as long as we did, which was where she wanted to be for as long as possible. We honestly don’t know how we would have made it possible for Mom to have all of the amazing days that she did without the physical and emotional support from the ALS Society.

We first heard about The WALKs for ALS in the summer of 2015 and talked about attending one with Mom. We fortunately were busy living as much life as we could live with her that summer and missed the opportunity.

We lost our mom in April 2016. Walking in her honour, we attended the Edmonton WALK for ALS in 2017. It was then that we decided we needed to bring this WALK to our hometown of Drayton Valley to help spread awareness for the horrible disease and build a support system in our community for anyone living with and affected by ALS.

The three of us (Melanie and Marcie Pruden and Nicole Tymchak, best friend of Marcie’s for over 20 years and known as the third daughter) attended a WALK training session in October 2017, and then we were on our way.

Being only 29 – 31 years old, the three of us have taken on something that most people our age would not. However, we are doing this to honour Audrey’s legacy and to help raise funds for the ALS Society and ALS research so that both can continue doing the amazing things they do. This is how we can give back to the ALS Society of Alberta to express our eternal gratitude to them.
We held our first annual WALK in Drayton Valley on June 16, 2018 and we look forward to organizing the event for many years to come."

June 22 - Bob Rock

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On day 22 of ALS Awareness Month, we talked to Lori Rock whose husband, Bob Rock lived with ALS. Lori shares Bob's #MakingItPossiblestory.

"I can recall the day, September 29, 2014 - almost to the minute - that Bob was diagnosed with ALS. In fact, he wasn’t even in the room when the doctor (neurologist) said to me, “this is bad, this is very, very bad”…this, after a quick handshake and checking Bob’s hands. After a brief check-up of Bob’s limbs, he came back to the room and said, “your husband has ALS”. The world stopped, and my heart shattered…and Bob didn’t even know yet.

In hindsight I would say we were perhaps one of the “lucky” ones, if there is such a thing when it comes to this disease. A very astute chiropractor recognized the symptoms when Bob went to see her because he was having trouble with his hands…she quickly eliminated any back issues and sent a letter to our family doctor who had a neurologist appointment booked for us immediately. Chiropractor, MRI, CT Scan to neurologist and diagnosis within just over a month. When I say we were lucky, it is because we knew so quickly the nature of the beast we were dealing with, without months or even years of visits to various doctors before the diagnosis could be made. When asked one time if he was angry about getting the disease, his quick response was “Nope - what good would that do? Anger takes energy, and I have no energy to waste”. There were lots of emotions, but anger wasn’t one that was allowed in. He was onto count his blessings, and look for the good, 1/2 full glass, rather than 1/2 empty!

Bob was a strong man, and although ALS eventually robbed him of the many things he loved to do - golf, horseback riding, even putzing in his shop, he faced each day with a smile and participated in these activities until he absolutely could not...even getting onto his scooter and heading to the shop when he was supposed to be resting! His strength kept us all strong - our two kids and their spouses, and our four beautiful grandchildren. As his breathing worsened, his speech worsened and his limbs deteriorated, they were the light on some very dark days. Never one to wallow, Bob took the news and faced the disease head on, with no false expectations or false hope. His life motto was you had to play the hand you’re dealt…and wow, what a hand. But our life went on, only now with a certainty looming ahead, not just a someday. Again, perhaps we were a little lucky because we were able to make plans for the future. And plan we did – he picked his final songs and readings and knew exactly who was going to do what at his final celebration.

But there was much to do before that day came, and all were made easier or in some cases, possible, due to the generosity of the ALS Society – a family trip to Hawaii, family reunions, two full winter seasons in Arizona and much time spent with our family and large extended family who tend to rally at any occasion, but most especially in a time of need. We had ramps built, toilets changed out, trees chopped, out-buildings sided, lawns mowed, flowerbeds tended, meals prepared, windows cleaned, horses and fences looked after, quiet moments of visiting and reminiscing, snuggling a baby…there was something for everyone.

The ALS Society…what can I say – they were one step ahead of us all the way, anticipating our needs and providing any type of equipment or gadget we might possibly need – bi-pap, lift chair, bath lift, stair lift…the list goes on. We will be forever indebted to them for their generosity and the quiet and gentle support they provided us. Even the ALS Society of Arizona was kind enough to help us out during the winter months. The disease knows no borders, and thus the societies seemingly have no borders!

As Bob's legacy lives on his memory will be kept alive and we will continue to help the society in anyway we can. In Bob's memory, we've held two memorial golf tournaments in Arizona, with number three in the works and all proceeds are donated to the ALS Society; a beautiful niece and her husband turned the traditional "bride and groom kiss" into an ALS fundraiser; and family members continue to participate in ALS walks in Barrhead, Edmonton and Kamloops , proudly sporting Bob's Boys, Beauties and Babes t-shirts.

Our prayer, at the onset, was that Bob's good days be many, and his bad days be few. In many ways this prayer was answered due so much to the support we received from the ALS Society, and the love and support of family and friends. Our prayer now is that a cure will be found for this beast - ALS.

Sadly, we have indeed learned, 'the last good-bye is the hardest one to say'."

Thank you Lori, for sharing this beautiful story.